Kalydeco to be available via the NHS to all G551D Cystic Fibrosis sufferers in the UK

June 15, 2012 at 12:19 pm (Uncategorized)

Kalydeco to be available via the NHS to all G551D Cystic Fibrosis sufferers in the UK
Responsible department: Department of Health

We are a Patients Interest Group for those sufferers of Cystic Fibrosis with the G551D mutation and want the government to approve the funding of Kalydeco to all those with G551D in the UK via the NHS.

Please sign their petition

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I am without…

June 14, 2012 at 12:53 pm (Poetry)

I am without a doubt the person you helped me become!
I am who I am because of your friendship, your support and your love.
Who would I be, if I had not meet you?
The friend that will forever be remembered and held in a safe place!

(Wrote Thurs 24 May 2012)

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